I recently read The Still Point of the Turning World and was blown away by it. It's a memoir by Emily Rapp whose son was born suffering from Tay-Sachs disease, a horrible, rare genetic disease that causes a progressive deterioration of nerve cells and mental and physical abilities resulting in death before a child turns four. The author has written a powerful, beautiful, devastating book about every parent's worst fear. Actually devastating doesn't even begin to describe how it felt to read this book. In many parts, I had a difficult time deciphering the words through my tears. Even now as I write this, I find myself with tears in my eyes. This book is the story of Emily's son, Ronan, and so much more. It's about philosophy, poetry, literature, and the question of how to live a mortal life.
I was totally immersed in The Still Point of the Turning World and when I finished it in one afternoon, I came up gasping for air and thought about my own son. He's 24-years old and just moved away last December to start his new post-college life in Ann Arbor. I'm happy and sad about it. And I know how lucky I am to be able to still have a son no matter how far away he might be living. . .
[Emily Rapp has also written Poster Child, her story about being born with a congenital defect that required the amputation of her entire leg below the knee; it's at the top of the stack of books by my bed that I'll be reading soon. On a brighter note - Emily gave birth to a baby daughter on March 8th. I hope that she won't need to write a heartbreaking memoir ever again.]