Becoming a caregiver is a life-changing event. Maybe it starts gradually, with a bit of household help now and again, or maybe it starts with the sudden shock of a phone call in the night. Whatever your situation, take heart in knowing that you are not alone. A wealth of resources is available to support you.
When you don’t know where to turn first, the Multnomah County Aging & Disability Resource Connection (ADRC) Helpline is a good place to start. Information and assistance is available to seniors, people with disabilities, and caregivers 24 hours a day. Call 503-988-3646 Monday - Friday, 8am-5pm, to reach the most knowledgeable staff. Through this same number, you can contact the Family Caregiver Support Program, which offers services that can take some of the burden off unpaid caregivers.
Elders in Action is another great local resource. Through their Personal Advocate Services, trained volunteers help older adults and link individuals to community resources. They focus in the area of housing, healthcare, crime, and elder abuse. Personal Advocate volunteers assist older adults in Multnomah, Clackamas, and Washington counties.
The Aging and Disability Resource Connection is a resource directory for Oregon families, caregivers, and consumers seeking information about long-term support and services. Here you will find quick and easy access to information about resources in your community.
The American Association of Retired Persons (AARP) knows that caregiving can be overwhelming. Through their Caregiving Resource Center, you can connect with caregiving resources both local and far away. Topics covered include Planning & Resources, Benefits & Insurance, Legal & Money Matters, Care for Yourself, Providing Care, Senior Housing, End-of-Life Care, and Grief & Loss. Caregiving Tools include a Care Provider Locator, a Long-Term Care Calculator, and even a Caregiving Glossary.
Caregivers for persons with Alzheimer’s and dementia face special challenges. The Alzheimer’s Association Caregiver’s Center can help arm you with the information you need to handle those challenges, whether you’re facing them now or need to be preparing for the future. Also through the Caregiver’s Center, you can locate local support groups, which can become an indispensable source of information and emotional support.
The Family Caregiver Alliance provides information on all aspects of caregiving, from public policy and research to practical tips on caregiving. Fact sheets on multiple issues are available in English, Chinese, Korean, Spanish, and Vietnamese.
Caregiver’s Magazine is an online magazine for, about, and by caregivers. Here you will find first-hand stories of others’ caregiving journeys, as well as an online bookstore and tips on resources and strategies.
There are 65.7 million family caregivers in the US--29% of the adult population--and caregiving affects the whole family. The National Alliance for Caregiving is a non-profit coalition of over 50 national organizations focused on family caregiving. The organization identifies new trends and sheds light on the varying needs of caregivers nationwide.
Caregiving is challenging enough when Mom is next door. What if she’s in Chicago? Or Boston? Having an ally on the ground to help you assess the situation can be exactly the extra bit of assistance you need to make sure that all goes well. The National Association of Professional Geriatric Care Managers can help you locate a professional Geriatric Care Manager, a health and human services specialist who helps families who are caring for older relatives.
If you’re a primary caregiver, or if you’re coordinating care at a distance, no doubt you know what it’s like to feel as if you don’t have enough hands, or enough hours in the day, to do everything that needs to be done. Lotsa Helping Hands harnesses the power of community and links it through an online service to provide help when it’s needed. You can create your own community and ask for help, without having to make a dozen phone calls or feel that you’re putting friends on the spot.
Finally, don’t forget to take care of yourself! The stories of other caregivers and how they’ve handled their challenges may give you the ideas you need to take care of yourself.
Contributed by jennyw